Tonight we did a little celebration at Clay Pigeon!
Click to see the full video on the gender reveal.
We are over the moon!
And 50 days later...we are outta here!
Hardest, longest, most emotional weeks of my life. A battle I’ll never forget.
Special thanks to all the nurses, doctors, specialists, respiratory therapists, occupational therapists, physical therapists, clinical therapists, etc for saving and taking the greatest care of our little warrior.
Now, let’s be a family for real.
#warriorannie #nicu #nicubaby #nicelife #omphalocele #omphalocelewarrior #sweetannie #theziggys #anniegoeshome #family #grateful #wagonrideout #timetogohome
Going on day 46... Warrior Annie is making big moves today!
NG tube out. PO challenge starts.
Thankfully, someone noticed her omphalocele size and loaned us the Jefferson car seat. She passed it like a superstar she already is.
Portable wound vac is still in the works.
Soon, she’ll be snuggled up with her fur siblings who are waiting for her at home!
#omphalocele #warriorannie #sweetannie #nicu #nicubaby #niculife #almost7weeksold #omphaloceleawareness #omphalocelewarrior #prettylady #deafmom #thatdeafgirl #jeffersoncarseat
Going on 40... Off O2 👍🏼
Off Morphine 👍🏼
Feeds increased 👍🏼
Gaining weight 👍🏼
Off Methadone 👍🏼
Bottle and breast feeding 👍🏼
Wound healing (very slowly) 👍🏼
Withdrawals 👎🏻
Formula 👎🏻
Taking in the volume she needs at once 👎🏻 Working on approval for portable wound vac. Just little ways to go before she comes home!
#warriorannie #sweetannie #nicubaby #niculife #omphalocele #omphalocelewarrior #almost6weeksold #milestones #almostthere #keeponkeeping #thatdeafgirl #deafmom #texanbaby
These two... If only we were home...
#niculife #itsthelittlethings #warriorannie #sweetannie #daddysgirl #family #omphalocele #omphalocelewarrior #nicubaby #countingdownthedays #myheart #thatdeafgirl #deafmom #mybaby #love
Hi I’m Amanda! So glad you stumbled upon my page. Some of you have been following me a long time or may be new to this. So let’s see here...I was born in city of brotherly love and raised in South Jersey. I’ve marked my roots in Jersey, Maryland, Virginia and most recently Texas! Married my best friend 7 years ago. Danced most of my life and now 9 years into Crossfit. Love to see the world. Dog mom to 3 adorable crazy pups. A new mom to a beautiful O baby girl currently in NICU. Anyone that is going through omphalocele journey can always DM me. Did I mention I’m bilaterally profoundly deaf since birth? Okay YOUR turn!👇🏻 #thatdeafgirl #introductions #newfaces #deafmom #blogger #lifestyle #deaf #omphaloceleawareness #nicumom #formerdancer #crossfit #dogmom #girlmom #MOOs #wanderlust #crossfit
Going on 29 days.
Warrior Annie has been surprising us as of late. Today I walked in on her able to use her soothe-n-glider and finally has a real crib! She’s also in clothes for the first time!
Her O2 level is weaning off quicker than expected and feeds are being compressed instead of continuous. Wound vac is making progress on her omphalocele. While she is going through morphine withdrawals, we know she’s trying so hard for her mommy and daddy to come home soon.
She’s come such a long way. We could not be more proud of our baby girl.
#warriorannie #sweetannie #omphalocele #omphaloceleawareness #birthdefect #MOOs #whatsinyouromphalocele #thatdeafgirl #deafmom #babygirl #nicubaby #niculife
CONGULATIONS
LikeLike
Congratulations!! I am so excited for you two!! Thanks for sharing this video. Miss you guys Love you 😘
LikeLiked by 1 person
You’re so welcome! We miss you too!
LikeLike